Hashimoto’s Post II

March 16, 2014

in Hashimoto's, medical

09d34d4d10b6e3eea9d339911228a940Wow. What a long week. Next week is ever going to be more busy…so yes, I am counting the days until spring break!

I haven’t written about Hashimoto’s in awhile, there really wasn’t anything new on the home front. Just trying new things and trying to find a system that works for me. It’s been a series of lessons learned. Some for the good and some not so good. Hashimoto’s is really an individual thing and no two cases are the same. Most of this past few weeks I have spent figuring out everything in my past 20 year medical history that was attributed to Hashi’s. It was a lot, by the way. Now it’s time to look forward and see where I’m heading. I have to say that no matter how annoying Hashi’s is I am grateful my symptoms aren’t horrible. There are so many people who are debilitated from this disease. I feel for them. Answer’s are not easily found and there is a lot of trial and error involved in finding comfort.

Monday I went to see my new Endocrinologist. I’ve been following her protocol for almost 10 weeks and sadly had no change. The gluten free diet didn’t really register and the medication didn’t budge my numbers. I did see an increase in adrenal function, so that was a positive. She switched up my medication in hopes of getting some gusto behind my metabolism. Right now mine is inefficient at best. I’ve been cleared to do some light walking and yoga in the evening hours. That physical exertion really wears me out so if I do it at night I can come home and go to bed. It makes sense. I was trying to walk in the morning and by the time I got to work I was done. My mo-jo was caput. Now I’ll have energy for work, carpool and errands and what’s left in the tank I can use to get my body back on track.

After 10 weeks of following my Hashimoto’s plan, I still wasn’t able to lose any weight. It was/is discouraging. I told the Doctor I wanted to try Weight Watchers and she laughed. I guess my body just isn’t there yet. (Check out this GREAT article from Thyroid Nation Fat Is Not Your Fault) The Doctor said maybe in a few months if my body responds to this new medication protocol I can hopefully get some weight loss. Her goal is to have me 1) eat better 2) be as active as my body will let me be so that when my metabolism kicks in I can be off and running (literally.)

My biggest obstacle is auto-immune. The Doctors can medicate thyroid function (Hypo/Hyper thyroidism) but they cannot fix damage that has already been done and will continue to happen from the autoimmune part of Hashimoto’s. There is not cure for Hashimoto’s. The antibodies in your blood will always be there and will continue to rise and take their toll. This affects everyone differently. Mine is mostly arthritic joint issues. Lupus has been tossed around more than I’d like to hear, but again, it doesn’t mean I have it, it just means that many of my symptoms fall into the lupus profile. I’ve decide not to worry about this. I’m learning to manage my fatigue, my joint pain in tolerable and everything else is every now and again so it’s not a big deal to work with. If I go in, they will more than likely give me pills. I hate pills. I can take them just fine but I will get the side affects of the medication. So unless my symptoms are bad enough, it’s not worth it to me to put my body through it. I’ll wait.

So that’s it. Thanks for checking in and welcome to all my new Thyroid friends (we really should have a special name. Someone think of a cool one.)

1 Laurel March 16, 2014 at 12:26 pm

You need to be able to run from the police and hide in casino bathrooms! That’s it!:)

2 Danna March 16, 2014 at 4:24 pm

Hmmm…..I will be thinking of a cool name. If my brain fog goes away. ha! Great article check-in. Laurels comment above made me laugh out loud. I’m also in a strange place with my weight. I haven’t gained any, but have not been able to lose the 10-12 lbs. that would make me feel better, especially in my clothes. Doesn’t matter how many Zumba classes I teach or how many yoga classes I go to, or how much water I drink, or the fact that I eat really well and take vitamins. It is infuriating at times. So, I just breathe and realize, I will be healthier and more fit, soon, so just have patience. (i try to say that, but sometimes, it doesn’t help)

3 Sandi March 16, 2014 at 7:46 pm

Hey Danna! Yes! We need a name for our Thyroid Posse, lets give it some thought and then we can get shirts made! And yes, my weight has been an issue. I’m hoping they can figure it out and get me at least down a few pounds!

4 Karen Reel March 16, 2014 at 7:05 pm

I’m sure the evening exercise is better that way since it’s too hot during the day right now!

5 Sandi March 16, 2014 at 7:47 pm

Karen- Good point! And I’m feeling better with this new medication so I’m hoping my energy levels stay put!

6 Katie March 27, 2014 at 2:34 pm

Suffer from ‘roid rage? Join Thy Beta Kappa! It’ll be like a sorority for women with thyroid issues. We’ll all have a gland ol’ time!

7 Sandi March 31, 2014 at 10:25 am

Katie- that is the funniest thyroid meme I have ever heard! Hahaha! Love it!

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